I’m including photos of my back even though I’m really self conscious about it. I rarely post photos of my rash because when I’m flaring I swell up and my skin looks awful. I hate posting photos because you can see my back fat from the prednisone and all my scarring from my previous flares.… Continue reading Warning graphic photos (active flare)
I struggle with this so much, unsolicited advice and passing judgement is something I deal with constantly. Imagine you don’t know me and you just see me and find out I have an autoimmune disease. You see this: Immediately you begin to tell me about all of the diets I should try and how it… Continue reading I don’t need your advice or judgement
As a person with a chronic autoimmune disease that will likely last a lifetime I have noticed I’ve had stages of acceptance. I’ve learned what it means to be sick and what it’s like to expend energy on things that don’t matter. I wasn’t always that way though and I think that my process has… Continue reading The Evolution of Chronic Illness
Sometimes when you are sick and constantly thinking about things only pertaining to you. Ie. (What will I eat today, how much energy do I have today, what do I absolutely need to get done) It’s easy to forget there is a whole world out there moving and continuing. Sometimes when I am flaring even… Continue reading The world doesn’t revolve around you…
Looking to the future is hard when you are chronically ill, when you practice all day every day taking it an hour at a time and making tons of small decisions. I don’t have it all figured out, I have a slight plan but it could go astray at any moment because I’m not in… Continue reading Things Ahead
You may or may not know other Spoonies besides me, and if you only know me, you’ll notice I use facebook, Instagram, and Snapchat religiously. I have a specific reason for why I’m constantly posting about my life. Here’s why: 1. So much happens on a daily basis that it’s nice to have one place… Continue reading Spoonies and the internet
People have all their favorite inspirational quotes for trying to inspire a sick person to, “keep fighting”. Two words I hate. It seems anyone who isn’t sick uses these two words whenever I’m venting about my illness. “Oh Elaine, I’m so sorry this is happening to you, just keep fighting.” Now this isn’t to be… Continue reading Keep fighting? Why?