You may or may not know other Spoonies besides me, and if you only know me, you’ll notice I use facebook, Instagram, and Snapchat religiously. I have a specific reason for why I’m constantly posting about my life. Here’s why: 1. So much happens on a daily basis that it’s nice to have one place… Continue reading Spoonies and the internet
People have all their favorite inspirational quotes for trying to inspire a sick person to, “keep fighting”. Two words I hate. It seems anyone who isn’t sick uses these two words whenever I’m venting about my illness. “Oh Elaine, I’m so sorry this is happening to you, just keep fighting.” Now this isn’t to be… Continue reading Keep fighting? Why?
The hardest part about being sick, especially during the holidays and winter months, is knowing and seeing everyone else beat along as if it was some easy task. Meanwhile, you feel so sick you can barely move or you spend your entire Christmas day in pjs and don’t take a shower until later in the… Continue reading The world continues on
I haven’t done much today. Mostly lived between the couch, my bed, and my bathroom. I haven’t showered since yesterday afternoon. My hair is greasy. I couldn’t drive today to get meds because my blood pressure was scary low. I am sitting here cringing in pain because my arthritis is flaring. My collar bone feels… Continue reading My body hates me
Hey everyone. I’m sorry I haven’t posted in a little bit. Tonight sucks. I’m here laying in bed completely exhausted. I have school tomorrow, but I can’t sleep because I’m in so much pain. I can feel my intestines contracting and it’s causing bad pain. It is definitely bad enough to go to the hospital.… Continue reading Sleepy
I am disappointed. I am disappointed that men who try to date me, will only date me if I give them every goary detail of my disease. I’m tempted to make a business card that says the following: Elaine Campbell Professional sick person Henoch-schonlein purpura and God knows what else I have tried the following… Continue reading Completely disappointed
People don’t really talk too much about how chronic illness fucks up your sleep schedule. At night is when I’m in the most pain and most nights are difficult to get through. Most healthy people have the uninformed opinion that the reason us spoonies can’t a sleep at night is because we sleep all day… Continue reading Insomnia