Looking to the future is hard when you are chronically ill, when you practice all day every day taking it an hour at a time and making tons of small decisions. I don’t have it all figured out, I have a slight plan but it could go astray at any moment because I’m not in… Continue reading Things Ahead
I have been struggling with this subject for a bit. I have friends who are healthy that tell me I’m an inspiration. I don’t necessarily think that’s a bad thing but I always immediately get irritated. I don’t show it, but it does bother me. Here are the phrases I get from people constantly. “You… Continue reading You are an inspiration
You may or may not know other Spoonies besides me, and if you only know me, you’ll notice I use facebook, Instagram, and Snapchat religiously. I have a specific reason for why I’m constantly posting about my life. Here’s why: 1. So much happens on a daily basis that it’s nice to have one place… Continue reading Spoonies and the internet
People have all their favorite inspirational quotes for trying to inspire a sick person to, “keep fighting”. Two words I hate. It seems anyone who isn’t sick uses these two words whenever I’m venting about my illness. “Oh Elaine, I’m so sorry this is happening to you, just keep fighting.” Now this isn’t to be… Continue reading Keep fighting? Why?
This last month has been hell on wheels. Without giving much info just know that my experiences this la as t month will be traumatizing for a while and for good reasons. The issue always arises that when you have a chronic illness the normal fucked up shit that happens in life is always way… Continue reading Trauma and chronic illness
Just because I’m out and about doesn’t mean I feel well. I’m digging into my reserves. I’m in Nevada right now and the dry air is proving to be a bit of a slight relief. I didn’t realize how much humidity affects my arthritis. I’m still sick here and I’m still experiencing extreme exhaustion and… Continue reading Just because…
The hardest part about being sick, especially during the holidays and winter months, is knowing and seeing everyone else beat along as if it was some easy task. Meanwhile, you feel so sick you can barely move or you spend your entire Christmas day in pjs and don’t take a shower until later in the… Continue reading The world continues on